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MCGUIRE, AMY

One or more keywords matched the following items that are connected to MCGUIRE, AMY

Item Type	Name
Academic Article	Genetics. No longer de-identified.
Academic Article	Medicine. The future of personal genomics.
Academic Article	Please don't call my mom: pediatric consent and confidentiality.
Academic Article	Personalized genomic information: preparing for the future of genetic medicine.
Academic Article	Exploring concordance and discordance for return of incidental findings from clinical sequencing.
Academic Article	Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network.
Academic Article	Return of research results from genomic biobanks: cost matters.
Academic Article	The legal risks of returning results of genomics research.
Concept	Hospitals, Pediatric
Concept	Genetics
Concept	Forensic Genetics
Concept	Genetics, Medical
Concept	Pediatrics
Academic Article	ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing.
Award or Honor Receipt	The Human Microbiome in Pediatric Abdominal Pain and Intestinal Inflammation (Co-I)
Award or Honor Receipt	Returning Research Results of Pediatric Genomic Research to Participants (Co-I)
Award or Honor Receipt	Baylor-Johns Hopkins Center for Mendelian Genetics (Co-I)
Award or Honor Receipt	Incorporation of Genomic Sequencing into Pediatric Cancer Care (Co-I)
Academic Article	Pediatric data sharing in genomic research: attitudes and preferences of parents.
Academic Article	Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.
Academic Article	Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.
Academic Article	Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject.
Academic Article	Is Whole-Exome Sequencing an Ethically Disruptive Technology? Perspectives of Pediatric Oncologists and Parents of Pediatric Patients With Solid Tumors.
Academic Article	Potential Psychosocial Risks of Sequencing Newborns.
Academic Article	Newborn Sequencing in Genomic Medicine and Public Health.
Academic Article	HEADS4: Social Media Screening in Adolescent Primary Care.
Academic Article	Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique.
Academic Article	Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project.
Academic Article	Challenging the Current Recommendations for Carrier Testing in Children.
Academic Article	Returning a Genomic Result for an Adult-Onset Condition to the Parents of a Newborn: Insights From the BabySeq Project.
Academic Article	Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents.
Grant	Evaluating utility and improving implementation of genomic sequencing for pediatric cancer patients in the diverse population and healthcare settings of Texas: The KidsCanSeq Study
Concept	Oncologists
Concept	Pediatricians
Academic Article	The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research.
Academic Article	Parental Perspectives on Whole Exome Sequencing in Pediatric Cancer: A Typology of Perceived Utility.
Academic Article	Direct-to-Consumer Genetic Testing: Value and Risk.
Academic Article	The road ahead in genetics and genomics.
Academic Article	Pediatric Oncologists' Experiences Returning and Incorporating Genomic Sequencing Results into Cancer Care.
Academic Article	Should Pediatricians Dismiss Families Who Refuse a COVID-19 Vaccine?
Academic Article	Key drivers of family-level utility of pediatric genomic sequencing: a qualitative analysis to support preference research.
Academic Article	Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.
Academic Article	Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle".

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pediatric
oncology
genetics